That sounds like a nightmare. I wish you every luck in your battle. To find something that helps, only to have it snatched away from you (bit dramatic, but basically is). I'd be interested to know how you get on. Guess it will be a long drawn out process. My woman has lupus and they fob her off on an 'almost the same' drug too, but that makes her ill whereas the original one doesn't. Seems like 'similar' drugs are a bit hit and miss, a bit like cloned tanks.